OpenForum – a blog by the Health and Human Rights community

A special preview of the next issue of Health and Human Rights: An International Journal, a theme issue on “Participation,” is now available, with select articles online, at http://www.hhrjournal.org/.

This preview of Volume 11 Number 1 includes an interview with Anand Grover, the UN Special Rapporteur on the right to health, as well as Critical Concepts articles covering participation as it relates to health in countries including Indonesia, Guatemala, and Palestine.

The full table of contents, including an exciting array of essays on both “Critical Concepts” and “Health and Human Rights in Practice,” is provided below.  Be sure to visit the Health and Human Rights website this fall to view the entire issue.

The journal is also accepting submissions for a forthcoming theme issue on ”‘International assistance and cooperation’ and Health and Human Rights Obligations Beyond Borders” (due October 15, 2009). Additional submissions information can be found at: http://www.hhrjournal.org/index.php/hhr/about/submissions.

Articles currently available:

The power of community in advancing the right to health: A conversation with Anand Grover [PDF, HTML]

Suffering and powerlessness: The significance of promoting participation in rights-based approaches to health [PDF, HTML] by Alicia Ely Yamin

Health through people’s empowerment: A rights-based approach to participation [PDF, HTML] by Pol De Vos, Wim De Ceukelaire, Geraldine Malaise, Dennis Pérez, Pierre Lefèvre, and Patrick Van der Stuyft

Social participation within a context of political violence: Implications for the promotion and exercise of the right to health in Guatemala [PDF, HTML] by Walter Flores, Ana Lorena Ruano, and Denise Phé Funchal

Participation and the right to health: Lessons from Indonesia [PDF, HTML]
Sam Foster Halabi

See below for a list of additional articles that will be included in the full issue. Read more

Dr. Claudio Schuftan’s response to my article advocating that HIV-positive mothers in resource-poor settings bottle-feed according to acceptable, feasible, affordable, sustainable and safe (AFASS) criteria rather than breastfeed their infants employs the same line of reasoning used in the late 1990s to not treat HIV-positive Africans with antiretroviral drugs. In fact, we can see his argument unfold below by replacing the terminology about bottle-feeding (crossed out) with ART (antiretroviral therapy, indicating access to triple therapy) terminology (added in red italics):

• “Economic access to six or more months of infant formula supplies ART is not realistic for poor mothers people living with AIDS in poor countries — nor, either, is access to clean water.”
• “Of course we need to set the same human rights objectives for ourselves in the global South as those set in the North. However, as public health nutrition infectious disease experts, it is our obligation to acknowledge the local reality of HIV and AIDS affecting important segments of the poor population in our respective milieus. That reality shows us that economic access to infant formula ART does not exist for vast numbers of affected women people living with AIDS.”
• “But the choice of whether to bottle-feed take ART or not is not really at the forefront for a woman person living with AIDS who cannot afford adequate food, has no adequate housing or access to safe water and sanitation, employment and education, let alone a right to gender equality health care.”

At that time, this was the same type of controversy, with good people and good intentions on both sides of the discussion. But thank goodness we didn’t listen to the majority of those who believed that the lack of financial resources and lack of education would prevent Africans from being able to take their ART medication correctly. We can now see that in fact these same uneducated, poor Africans are more adherent than Western populations. History has proven that the faithful activists, who believed that lack of financial resources was no excuse for providing substandard care, were right. Read more